Tag Archive | "#JennStrong"

An update on #JennStrong as she undergoes bone marrow transplant this week

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An update on #JennStrong as she undergoes bone marrow transplant this week

Posted on 11 June 2014 by Nestor Aparicio

Today, my beautiful wife and best friend enters Johns Hopkins Kimmel Cancer Center to receive the greatest gift that any leukemia patient can be given: a bone marrow transplant and a second chance at life with a new DNA from a very generous (and anonymous) donor from somewhere out there in this wonderful world.

We’ve received so many cards, letters, emails, Facebook and Twitter mentions via #JennStrong – the sheer volume of love that has flowed in the direction of Jennifer Ford Aparicio over the past 90 days has been staggering and eye-opening – and we want to first just express our gratitude for all of the concern and offers of kindness and sweet gestures. As awful as some our experiences have been with people over the years, this time in our lives will always be remembered for the good (if not the BEST) in people, especially when some days the burden felt very heavy for us.

The love has truly been medicinal on some days when she struggled physically and emotionally. Make no mistake about it, this has been heavy lifting in so many ways.

We’ve been peppered with so many questions and concerns regarding her health and honestly don’t know where to begin with dispensing some of the more amazing – and at times “gruesome” for the queasy amongst us – information regarding blood cancer, leukemia and bone marrow transplants. I’m probably the biggest wuss on the planet when it comes to the mention or sight of blood (and Jenn is diabetic to begin with) so this whole thing has been like seeing snakes for me from the beginning.

But here’s what you really need to know and hopefully this blog answers some of the FAQs of the #JennStrong bone marrow transplant:

Jenn enters the hospital today and will undergo a week of chemotherapy in preparation for her bone marrow transplant next Tuesday, June 17. (This will be her new “birthday.”) There is no “surgery” – just a bag of stem cells and blood that gets attached to her via her port, a pair of tubes that were inserted into her back on March 21st.

Our understanding is that there are many less than desirable outcomes that could result from this procedure – there are whole handbooks on Graft vs. Host Disease and other scary complications. Our doctors have been steadfast in their belief that she’s a great candidate for this procedure and that a perfect match and new DNA and bone marrow could give her a whole new lease on life over the next six months. They were also very sobering in their discussions of all of the percentages of living vs. dying, cure vs. recurrence of cancer and various ailments that could exist or take place during the next few weeks.

But it’s also very clear that this is Jenn’s only chance to survive because even though she’s in remission and cancer free right now, her pathology indicated that her specific leukemia would certainly come roaring back before the end of football season.

Last week a dear friend and client went to breakfast with us and began the conversation by saying, “Wow, you guys have been through a lot of bad stuff!” And we said, “Sure, but let’s examine where we were three months ago and the amazing place where we are now.”

On March 20th at 8 a.m. after months of planning with Jenn and my family, I announced the release of my book on the Orioles and Peter Angelos called “The Peter Principles” and my radio comeback after nine years off the air. Nine hours later, Jenn was diagnosed with a rare form of leukemia. She began chemotherapy the next day.

On March 27th the doctors somberly entered her hospital room and told us that in terms of treatments there are three types of leukemia: good, intermediate and bad. We were told hers was

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See the Ravens play on WNST Purple Roadtrip to New Orleans (Nov. 22-25)

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See the Ravens play on WNST Purple Roadtrip to New Orleans (Nov. 22-25)

Posted on 21 May 2014 by WNST Trips

So glad you’re planning on joining us for a weekend of Bayou fun as the Ravens and the purple fan base return to New Orleans, scene of the Super Bowl XLVII victory.

We have two different itineraries to choose from – and both include 3 nights hotel in New Orleans on this legendary trip back to Louisiana.

Early Trip (Saturday through Tuesday): Our WNST flights from BWI on Southwest Airlines depart on Saturday afternoon and return on Tuesday morning.

Late Trip (Sunday through Wednesday): Our WNST flights from BWI on Southwest Airlines depart at 5:35 p.m. on Sunday and return on Wednesday at 5:40 a.m.

We’ll be staying at the Courtyard by Marriott near the Convention Center, within blocks of the casino, Bourbon Street and all of the great sights and sounds of the Crescent City.

On Sunday, we’ll be hosting an NFL viewing party for Ravens fans in the French Quarter and enjoying the Cajun food.

On Monday, WNST will be hosting a massive purple brunch cruise on the famous Natchez Riverboat on the Mississippi River and we’ll stage a giant outdoor tailgate along the riverfront (just like last time). All of our travellers will be aboard the boat for the best pre-game “tailgate” in Ravens road trip history.

Here’s a video of the last march we did in New Orleans in February 2013:

https://www.youtube.com/watch?v=Lz4pXE0L15g

Here’s what Ravens head coach John Harbaugh had to say about it:

https://www.youtube.com/watch?v=9exPFT_TOUQ

Ask anyone who attended our event last year. You’ll know why you’ll wanna be with us on Monday, Nov. 24 in New Orleans!

INCLUDED:

YOUR CHOICE:

RT airfare from BWI to New Orleans on Saturday, Nov. 22 with a return on Tuesday, Nov. 25 (EARLY TRIP)

- OR -

RT airfare from BWI to New Orleans on Sunday Nov. 23 departure that returns on Wed., Nov. 26 (LATE TRIP)

AND

Upper deck seat for Ravens at Saints

3 nights hotel accommodation at Courtyard by Marriott Convention Center New Orleans

Full brunch and cruise on the Natchez on Monday

FREE COPY of “Purple Reign 2: Faith, Family & Football” to read on the flight

BOTH TRIPS HAVE SAME PRICE!

COST  (per person):

SINGLE (1 in room): $1250 pp

DOUBLE (2 in room): $950 pp

TRIPLE (3 in room):  $900 pp

QUAD (4 in room): $850 pp

Simply click on ADD TO CART below…and specify your EARLY or LATE status. You must include your email so we can reach you for your information for the airline!

How many in your room?
WHICH TRIP?

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See the Ravens play on WNST Purple Roadtrip to Miami (Dec. 5-8)

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See the Ravens play on WNST Purple Roadtrip to Miami (Dec. 5-8)

Posted on 21 May 2014 by WNST Trips

In what has become an almost annual pilgrimage to South Florida, we head back to the sunny Fort Lauderdale/Miami area for a December 7, 2014 visit with the Dolphins. There’s nothing better than the beach or some golf or some sunshine and palm trees during the holidays.

We are offering two different itineraries for folks travelling for the game so please read carefully. We have a two night and three night package deal that includes all that you need (except for a rental car, which we highly recommend in South Florida!).

WNST TWO-NIGHT VALUE PACKAGE INCLUDES:

RT air from BWI to Fort Lauderdale on Saturday, Dec. 6 at 6:25 a.m. flight and returning Monday, Dec. 8 at 6 a.m.

Two nights at Courtyard by Marriott in Fort Lauderdale

One upper deck group game ticket for Ravens-Dolphins

WNST pre-game pep rally on Saturday night

COST (per person):

SINGLE (1 in room): $750

DOUBLE (2 in room): $625

TRIPLE (3 in room): $575

QUAD (4 in room): $550

Simply click on ADD TO CART below…

How many in your room?
Beds in room

 

WNST THREE-NIGHT PACKAGE:

RT air from BWI to Fort Lauderdale on Friday, Dec. 6 at 6:25 p.m. flight and returning Monday, Dec. 8 at 9:30 p.m.

Three nights at Courtyard by Marriott in Fort Lauderdale

One upper deck group game ticket for Ravens-Dolphins

WNST pre-game pep rally on Saturday night

COST (per person):

SINGLE (1 in room): $975

DOUBLE (2 in room): $800

TRIPLE (3 in room): $750

QUAD (4 in room): $700

 

Simply click on ADD TO CART below…

How many in your room?
Beds in room

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#JennStrong UPDATE: My wife needs a bone marrow transplant

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#JennStrong UPDATE: My wife needs a bone marrow transplant

Posted on 25 April 2014 by Nestor Aparicio

It’s been 36 days since my wife, Jennifer Aparicio, was diagnosed with leukemia and as we go deeper into solving the mystery of this blood cancer and navigating how she will survive this diagnosis, we’d like to update the thousands of people who have reached our way regarding her condition and our situation. We sincerely appreciate the #JennStrong love.

On the night she was diagnosed – March 20 – we had to make a family decision regarding how public or private we were going to be with her cancer. Once we told our inner circle of friends and family, we realized that there was going to be no way to “hide” from this leukemia or my public status or her extended family, friends and loved ones. In the world of social media, we’re all very active and we think that’s healthy.

We quickly decided that we’d rather be transparent and go after this cancer the way we’ve done everything in our lives: “all in.” We couldn’t hide. We couldn’t stop rumors or misinformation if we decided to unplug or hide from the world – as many people did for many years before the explosion of the internet and social media. We didn’t want people worrying and wondering: “How’s Jenn?” So, we decided to simply be ourselves and share our information with the world.

Honestly, we were blown away by the rapid response, reach and love that so many people showered us with in the first few days after her diagnosis. Now, more than a month later, she hasn’t left her hospital room for more than a few minutes at a time to wander the halls of Johns Hopkins. She hasn’t seen a sunrise or sunset in 37 days. She hasn’t seen Kitty (except on Skype) for 38 days. She’s attached, via a tube in her chest, to a stand that she takes everywhere. She has no immune system and is susceptible to virus, illness and fever at any time so having lots of visitors isn’t smart, safe or feasible.

Cancer sucks. It really, really does.

We have posted a myriad of funny pictures, some tender moments, some Red Sox love from Boston, some gifts and upbeat videos, but please don’t let us fool you – this is the worst thing I’ve ever witnessed. It’s gruesome. Lots of blood, kidney issues, breathing difficulties, waiting, needles, procedures, tests, fevers, chills, rashes, itching, exhaustion, nausea, diarrhea, lesions and sores in her mouth and general aching all over – it’s the worst thing you can possibly imagine.

And, again, I’m not going through it. I’m just observing and agonizing almost helplessly while I do everything in my power to will my best friend to victory over this disease in the coming months.

She’s really tough. Just as I wrote last month, we believe in the cure. We believe in a happy ending. And we’ve befriended and met people who are survivors and they’re all coaching Jenn along in this journey. Over the next few weeks you’ll meet them on my radio show, “The Happy Hours” on WNST.net & AM 1570 and you’ll hear their stories of survival.

Erik Sauer, who is the founder of There Goes My Hero, beat this thing in 2008. Michele Bresnick Walsh, made famous by her incredible trip to Fenway Park where Big Papi and the Red Sox Nation gave her #JennStrong love and a #BostonStrong jersey before the Orioles game last Saturday on marathon weekend, is also a survivor (and major O’s fan) is helping coach Jenn through this fire.

They are living, breathing “heroes” in my heart and mind. They’re trying to help save my wife’s life. It doesn’t get any more powerful or profound than that. And only because someone else saved their life.

Jenn and I learned of her true diagnosis a few weeks ago and have come to grips with the fact that only a bone marrow transplant can save her life.

This is a rocky road, navigating a rare form of leukemia called

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WNST & Sport Clips team up for #JennStrong to beat leukemia

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WNST & Sport Clips team up for #JennStrong to beat leukemia

Posted on 04 April 2014 by Nestor Aparicio

Thanks to the many folks who’ve reached to us to support my wife, Jennifer Aparicio, in her battle with leukemia. Over the past two weeks we’ve known her hair was going to fall out from the chemotherapy and I shaved most of my hair on the first morning after her diagnosis two weeks ago.

I’ve received many notes, texts and seen social media statuses regarding other folks wanting to join me in my solidarity with my wife, who had her hair shaved off last night at Johns Hopkins. She looks great and is battling the normal side effects of her cancer treatment but we remain #JennStrong & #BmorePositive for a cure and a happy ending.

In the meantime, we’re trying to raise money for a great group of folks at a local organization for leukemia victims, called www.theregoesmyhero.org. My new friend (and angel) Erik Sauer is a leukemia survivor from Bel Air who founded the group after receiving a life-saving bone marrow transplant from a 19-year old girl in Germany in 2008. It will become our mission over the next few months to help him fund his foundation but more importantly to get many folks to become bone marrow donors as we get some WNST events together later in April and into early May. We’ll have a lot more details coming over the next two weeks about ways you can help.

In the meantime, for those who want to shave their heads in support of #JennStrong, we’re offering you this great chance to stop by any of the 18 participating Sport Clips in the Baltimore  area and tell them you want your head shaved for leukemia. (They will either use a No. 1 or No. 2 cutter…they do NOT use razor because of safety issues!)

We’re requesting a $10 minimum donation to the organization and we’d love if you tagged your new “cue ball” hairstyle on Facebook, Twitter and beyond with #JennStrong and #BmorePositive. The money goes to There Goes My Hero for funding and bone marrow transplant love.

This offer begins on Saturday, April 5th and extends through next Friday, April 11th.

I’ll be having my head shaved on Monday at 6:30 p.m. at the Fullerton location (7964 Bel Air Road) just outside the beltway. You’re welcome to join me or go to any Sport Clips location near you at your convenience and simply share the picture on social media. We will retweet and share all photos in solidarity for #JennStrong and all leukemia patients and their families.

Thanks for all of the support and love for our mission to find a cure for Jenn.

The last 15 days have been a hard, humbling yet immensely rewarding period for us. Your love, words and offers keep our energy and spirits high.

And here’s more on There Goes My Hero:

 

Appreciate you…

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